Daisy had a pretty good night. Our nurse gave her some tylenol to ease her discomfort and she was able to sleep straight through a few hours. This morning has been pretty rough though. I'm finally able to feed her and she is desperate to nurse. Although once she starts she just passes out. She wants to be held, but is just so uncomfortable with the IVs and her poor raw throat. Joe and I have taken turns holding her and just trying to help her stay asleep. Joe stayed up with her all night so I could finally sleep a little and he's holding her now. She is definitely comforted by her daddy. She's always been very attached to every single person in our family and it's obvious now that she needs us all.
We just met with her doctor and he told us her x rays are showing that she has pneumonia in her right lung so they have her on antibiotics. They are also sending a specialist to check her out because she still doesn't have her voice back. She cries a lot and it's just a tiny meowing sound, like a little kitty. We are moving into pediatrics today, so no more PICU and that is such good news. But we will probably still be here for another 3 days or so.
I am definitely hitting a wall. My energy is gone and all of the adrenaline that has kept me alert and moving has slipped away. I'm crashing. I am easily overwhelmed and upset. When she cries and I can't help her I feel my heart sinking into my feet. I'm depressed.
But I feel the strength and mercy of Jesus in every moment. I know that he has hovered over my baby breathing healing and fresh life into her. He isn't done. She is always getting better. She's still a fighter. My sister-in-law says we can't call her "Dainty Daisy" anymore and my girlfriend Alisa says she's "Daisy Duke" now. She's puttin up her dukes and fighting back.
We are continually touched by the outpouring of love and prayer. My Holy Yoga family has rallied to raise financial support for us and instructors are dedicating their classes to Daisy, praying for her. Numerous friends have ordered food for us (and even for the nursing staff) and some friends in Phoenix have picked up our dog who is currently happily swimming laps in their pool. Friends have gifted us with money to cover the expenses of Joe missing work and of being away from home. My aunts, parents and mother in law have watched our kids and brought them here to see Daisy. Our friends here in Tuscon have come to visit and helped us make sense of the information we're receiving. They have brought food and offered beds for our families. My girlfriend in California is flying out tomorrow to sit and cry with me. We are just so overwhelmed - in a very good way.
Please keep praying that Daisy will make a quick recovery. She is still battling so much and she is just so miserable. I ache for her and there really isn't much I can do to make her feel better. It's terrifying to watch her struggle to cry and to hear her raspy breath. I know she is getting better all the time, but I find myself feeling frustrated that she isn't herself yet.
Our family at Revelation Wellness posted this blog this morning and I just keep re-reading it and crying. This morning I am also praying for every single one of you. May Daisy's struggle breathe new life into you as well. May the God of green hope spark love and joy in your hearts. Every moment of Daisy's healing is whispering the name of her Creator. He is vibrantly alive in her little heart. I see his face every time I look into her's. May we all find ourselves sitting back and watching the Healer as he changes our lives.